I am showing this post from “I will carry you” as it describes perfectly what it means to care for a special needs child. As Midwives, we are often in the position of breaking the news to patients that their version of the “perfect” child will not be. That is not to say that life will not hold many special gifts for them and that life will not be wonderful in the long run. However, this is a very difficult concept for parents to grasp. This is a beautiful illustration of letting go and letting be, whatever life has in store for us. Thank You Nora for teaching us what a beautiful life this can be, for all of us!!!!
So here we are with a big giant 2 year old little girl. Nora’s birthday was April 17th and I am astounded at how fast the time has gone by. I look back to those scary newborn days and can hardly believe how far Nora has come; how far we have come.
One of our awesome nurses, Kate C. getting us ready to be discharged from the hospital ~ April 2012
As we left the hospital that sunny afternoon, we stepped blindly out onto the dark water as Peter did. Jesus beckoned us forth with arms outstretched. Taking a baby home from the hospital who was SUPPOSEDLY “incompatible with life” certainly made about as much sense as walking on water. “How in the world are we supposed to do this????” we pleaded. It was an outrageous proposition! We weren’t equipped with a medical background. We did not possess some sort…
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